Thursday, 8 February 2018

Happy birthday, Wheelz!

To my partner in crime, my pick me up when I'm feeling low, my very best friend

I know it's been a real shitter of a week, what with bathroom reno still never ending, and leurgies from Lil Monster still taking their toll.
I just wanted to take the time to write you this, before I go to bed. I'm lying in bed, listening to you listen to 'More Than Words', and thinking I'm so glad that I stayed up till midnight to be your first 'happy birthday'.

You never believe me when I say it, but I truly do feel lucky to have you as my best friend. There's no one in the world who gets me like you do, and vice versa. We've had a hell of a year together, haven't we? Moving house, Lil Monster dramas, various diagnoses and appointments, renovations...
And there's no one else that I'd have wanted to go through it with, both good times and bad.

Here's hoping that this year holds more good than bad (and I'm knocking on every available piece of wood for that!). I hope you have a fantastic day, because I can think of no one who deserves it more.

So to the incredible woman who taught me the true meaning of strength, resilience and bravery, as well as a kick ass sense of humour, happy birthday, Wheelz.

From

Stripes, and the beasties





Tuesday, 6 February 2018

Well I didn't get to sleep yet but.....


... I did set up a twitter account!!  Not sure how much use it will get but if anyone is reading this and wants to say hi, just go to twitter and send us a tweet!

Happy birthday to me.....well, nearly!

I'm 48 on Friday and my head is abuzz.

There's the meeting with the Doctor where weight loss surgery was suggested. The follow-up meeting where it was chased up. And the two friends who have undergone said surgery in the last three months alone.

I've been following keto since December, with a break for Christmas, and according to the scales have lost the grand total of 11 lbs.  Near-daily photos of my face show a difference but that could just be lighting, eyebrow makeup and the angle of the phone - according to me anyway.

For my birthday, I decided to shave most of my hair off and bleach it blonde. Yep, I'm finally going blonde - I've wanted to do it for nearly 30 years but have always chickened out as I thought my mother would disapprove (believe me, I KNOW I have mummy issues and there isn't enough room in this post to go into it).  Now, this decision was also based on the idea that the newly installed wet room would mean I can shower regularly and wash/dye my hair myself - some independence at last!! Into the third week of the renovation (that was meant to last a week to ten days), and the hope is dwindling. My birthday is Friday and although the shower is working (at the moment), the water pump is not which means the water doesn't drain away.

We don't need another flood and the cats object to getting their paws wet, so no shower for me.

It's been - well, difficult is the polite word for it. I'm not sleeping; the cats are stressed because of strangers in and out all day as well as the noise; Stripes is stressed because she's trying to look after everyone and make it all okay when it's completely out of her control; and Little Monster gives no f*cks whatsoever because that's her MO.  Things got even more stressful when Little Monster called from school on Friday saying she wasn't feeling well. She threw up on Sunday which meant mandatory two days off school - during which time she has driven both me and Stripes completely insane.  Thank God she's going back tomorrow, but not before making sure to pass her leurgy on to me. Which is why I'm awake at 05:39 on a Tuesday night, when I should be resting/sleeping. I'm halfway through a roll of toilet paper blowing my nose and wishing that sneezing didn't make my back seize up nearly every single time. The pain of trying NOT to sneeze is almost as bad as the pain when I do!

So, very quick catch up because I should at least attempt to turn the lights off, put on the CPAP mask and close my eyes before 6 am.

January : I helped make one batch of soap. Stripes has made several more and they are getting more beautiful and more intricate as she goes. Beautiful enough to use as birthday presents for family and for them to ask where we got them from.

February:

  • grow my eyebrows (they are shamefully sparse), 
  • bleach my hair
  • live in the shower for at least a week
  • keep on keto


March: to be decided, although hopefully keto will still be ongoing and my eyebrows will be becoming bushy!

We went to the Dr in January for a smear test. And it was just as enjoyable as you might expect. The room they wanted us to get to was awkward with the wheelchair - sort of round a corner and through a narrow doorway into a small room; the bed they wanted me to lie on was narrow and kinda scary; and the privacy was non-existent to be frank. But hey, I managed it and the results were fine so check that off the list. The next doctor's appointment was worse because the room where it was held was through a doorway that was too narrow for the wheelchair, so I had to lean against the wall whilst Stripes semi-put the chair down and dragged it through the doorway, set it up again and caught me as I collapsed into an ungainly heap. No members of staff tried to help us - a member of the public kept the door open for us to get through.

And this is a relatively new doctor's surgery which has disabled parking, some automatic doors and lifts. It beggars belief, it really does.

So I haven't been out and about much - a trip to Asda has been the most adventurous I've got, and that was FUN because I was on a mobility scooter and could race Stripes and Little Monster down the aisles!

I will try to write more, but I've been feeling rather low and rather useless - what do I have to write when I don't go anywhere or do anything?

Well apart from the Thirty Seconds to Mars concert we are booked to go to in March; and that rain or shine, we are going to the cinema to see 'Black Panther'; and probably going to the cinema to see 'Fifty Shades Freed' because not only is it delicious trash, but it has Tyler Hoechlin in it and he is one of my current 'crushes' (six years and counting so far). But apart from that, we won't be going out much, honest.

Yeah, I'll write more - I promise!

The Never Ending Story

OK, that might be exaggerating a little bit, because it's almost over with. I bloody hope it is, anyway.

I had hoped to have a post set up for the end of January, when our bathroom work was due to be done. But, as is often the case with our luck, works have taken longer than expected. Then things stopped working. Then they started working, and something else stopped working. To be honest with you, it's kind of the story of our lives.

A bit of backstory. When Wheelz, Lil Monster and I moved in August, we moved into a property that an occupational therapist said needed to be converted. This was absolutely fine with us. Wheelz's physical restraints mean that a bath is too much to manage, whereas a shower should be absolutely fine. The grant took a while to come through, but eventually, at the end of last year, we were given a date in January when work would begin.
We were incredibly excited. As I said, it would mean so much for Wheelz especially. She could take showers independently, with no worries about getting in or out of the bath. She'd be able to wash her hair properly, instead of using the no-rinse shampoo from the care supply shop. The work that needed doing, which they predicted would take a week to ten days, would be well worth the initial inconvenience of having workers in, right?

Well... I suppose so. But it's not done yet.
When the work first started, it was tough to get used to. Early mornings blighted by incredibly loud noise from drilling, and removing tiles, and rerouting plumbing. People flitting in and out of our home, with no introduction and few explanations. The cats were freaking out at the intruders, spending a lot of time hiding, and not eating, and keeping very close to us for protection.
For a few nights, Wheelz had to sleep on the sofa, because it was too much for her to cart all of her stuff (painkiller drawer, CPAP machine, duvet, crutches etc,) through to the living room. The dust kicked up, made her asthma worse. The tools and supplies made our flat a veritable assault course to get from one end to the other. The kitchen was filled with toilet cisterns and new sinks, whilst my bedroom doorway held shower rails and parts.
We spent two days barely able to get through the front door because of the giant box that housed the shower gates.
Saturday mornings weren't exempt either. Our plumber wanted the job done as soon as possible, which meant starting early, working weekends and bringing in extra help/apprentices (his identity was never made clear to us).
We spent time poring over tile colours and floor coverings to make our selections, sweeping up the debris caused by builders wandering through the flat and keeping our fingers crossed that they would be finished soon.

And, thank God, they said they were. On Saturday just gone, 3/2/18, he said he was finished. He showed me the shower, and told me that we just had to wait on the electrician to hook it up, and it was ready. He walked me through the issue with the boiler and explained that he'd complete the radiator just as soon as we got it repressured (?), so that he wouldn't overload it and cut off our heating.
I'll tell you, Wheelz and I rejoiced. We'd spent the last two weeks managing with strip washes in the sink, and were desperate for a proper shower, with hot water and handmade soap- which I promise, I will eventually get around to posting about.
The electrician showed up yesterday morning. He disappeared into the bathroom for a while, whilst we waited with bated breath to hear that the shower was done. Then we heard him on the phone to the plumber. There was an issue, the said. The circuit board wasn't working. No bother. A quick job, which they would pop around this morning and fix. We tempered our disappointment, and waited for them today.
The plumber showed up this morning. He brought the new circuit board, and reiterated that it was an easy fix. He disappeared into the bathroom. An hour or so later, he stuck his head around the door, and asked if I wanted to see the shower working. I nearly knocked him over, trying to get there so quick. And it worked! You pressed a button, water flowed out. I was ecstatic! He got me to sign off on his work, and bid me a good day. When Wheelz awoke, she wanted to come see the new shower, so that she could finally, finally use it.

Except, when Wheelz came to take a look, there was an issue. We pressed the on button, and it started flashing red.
Now, we're fairly capable, resourceful women. So we had a look through the manual, and managed to right the problem. For a few short minutes, it was great. We had flowing hot water!!
Then we noticed that the pump wasn't working. The water wasn't draining, and was in fact making it's way to the toilet with surprising speed. We got in touch with the plumber.
He came around to ours, and expressed surprise that it wasn't working properly. After all, it had been just fine when he had left, not even an hour before.
"That never happens. If there's ever a fault, it's with the shower or the pump, but never both."
Wheelz and I exchanged a droll look. With us, it can always be both.
So, the plumber took a look, dried up the floor, removed some tiles. An electrical fault, he thinks. So he called the electrician, who can't be with us until about three. The shower's fine, he said. No problem there at all. Just the pump not working.
So the electrician has to come by and try to fix it. If he can, the plumber will be back in the morning to replace the tiles. If not... well, I'm trying not to consider that possibility.
We need a shower back. For obvious reasons - the back of Lil Monster's neck is looking disturbingly grey - but also because Friday is Wheelz's birthday.

Historically, no matter how much organising and haranguing and threatening I do, something goes wrong on Wheelz's birthday. Whether it's Lil Monster kicking off, or Bible Sis refusing to get in touch or visit, or having to put the day off because of illness, there is always something.
It feels worse this year, because this was meant to be done. She was meant to get a hot shower, and some handmade soap and a new bleached hairstyle for her birthday. I'd planned it, made it work, willed it to be so, goddammit! But yet again, things are starting on a bad note, and it's not even something within my control.

So, we'll wait until later, to see if the electrician can fix it. And we'll manage if he doesn't, because that's what we always do.
But you mark my words, if this neverending story doesn't find a cut off point sometime very soon, I'm going to be having serious words with whatever cosmic forces have got it in for us!